What a Saturday

Wow, what a beautiful day in South Florida. Not too hot, a nice breeze and very sunny. I am sure all the snowbirds will be heading down soon. Dave got me an orchid from McClain's. It's a beautiful vanda. He said even i could keep it alive...we'll see.
Well my Seminoles FINALLY won a game. They have become a team that only a mama can love. Go Noles. Now Watching Gators vs S.Carolina. Who the heck do I cheer for?
Talked with my cousin today from Tenn. Hi Jeannie! I have a great family! I think I must have thousands of people praying for me ALL over the U.S. thank you to all of you who have passed the word. God is really taking great care of me these days!

TGIF

What a beautiful day in West Palm today. Sunny and cool.
Mom, Dave and I went and got a great wig. I think I may want to shave my head early just so I can put on this perfect hair every day. Since we were already down south we went to the Hard Rock Casino for a couple of hours. Dave and I played together and won some $$$ playing 3 card poker. We left while we were ahead. Yeah!
Now that I finally have all my bandages off I can actually take a shower and wash my hair all by myself. Little things feel so good! Still very swollen and sore so I just keep lots of advil and ice handy.

Terrific Thursday

Went to Dr. Masse this morning. The last nodes they removed were ALL negative. The oncologist KNEW FOR SURE from the PET scan and MRI that 2 of them were cancerous. Well I guess my God knew better!!! What this means is that only 1 sentinel Axillary node had micrometastatic cancer in it. This brings my cancer down from Stage 3 to stage 2. It also means that this is just the beginning of all the prayers being answered!
Got all my records together to take to Moffitt next week.
My brother, Dave, and my mom came down today. We went and got a cute ball cap that has hair the same color as mine that is attached with velcro. That way you can just keep changing the hair to different color ball caps. The had a button at this place that said "I paid my oncologist alot of money for this hairstyle"
Gotta keep my sense of humor.
Oh, I am gonna sleep good tonight.

Veterans Day Wednesday

Court Holiday so Tom was off. We went into the office so I could catch up on some bills then up to Port St Lucie to drop off a key to the realtor. House is back on the market. Selling boat too. We are "simplifying" our life! Told to stay out of the sun for the next year because of chemo and radiation so boating is out. Tom and I went to the sari center over by Good Sam. What a great place. They talked with us about every question we could think of regarding side effects of chemo and nutrition and just general knowledge of what we are going through. My hair will start falling out about a week after chemo starts so we went to the Amer Cancer place here and got a wig. Looks like I put a guinea pig on my head. Maybe my hairdresser can help me with this. ANN?
I have a feeling I will be a scarf or ball cap sorta girl.
Now have an appt at Moffitt for 2nd opinion on Tuesday. Still starting chemo next wednesday but would like to have and be kept up on all the progress made on triple negative breast cancer. Things are really changing fast which is great.
Appointment with my surgeon in the morning to get bandages off and get most recent pathology reports. I love Dr. Masse. She has a potty mouth (takes one to know one) but a great heart.
When Tyler was here I got down on my knees and he walked up to me and put his little finger on my bandages. I said "grandma has an oowee, be careful" and he leaned over and gave my bandage a kiss. OH...melt my heart!

Tuesday 10th

Well, house is quite. Wendie, Karyn and Tyler all left around 12:30 today.
Will miss them.
Wendie found a place called the Sari Center near Good Sam hospital. It is place just for cancer patients. They do counseling, nutrition, yoga, massage & acupuncture among other services. They are all nurses and they help on a sliding payment fee for anyone who has cancer. Pretty cool. I have an appointment with the nurse educator to get going with them. Sounds like it will be helpful.

Monday the 9th

Had my mugascan today. Nuclear medicine, It really is incredible.
Dr. Masse said she thinks my mouth issue is probably from my antibiotics, so I am going off of them and see what happens. I have another appt with her on Thursday so if not remarkably better by then I will get pill for Thrush.
Moffitt could not get me in until Dec 2nd. That is right before my 2nd chemo treatment. I am not willing to wait an extra 3 weeks to get my treatments started.
There are couple of doctors locally that are affiliates with Moffitt and I have put in a call to one. I do believe there is a "standard of treatment" for triple negative breast cancer, just as there is for estrogen, progesterone or HER2 breast cancer.
I am trusting God to make sure I am headed in the correct direction. I feel I have had fabulous doctors headed up by Patricia Masse my surgeon.
Thanks everyone for your blogs. Have enjoyed keeping up with everyone.

Sunday Morning

Karyn and Tyler came yesterday. Tyler had a rough night. He is not usually a crier but was overtired.
I think I am going to church on the internet this morning. Trying to keep myself away from crowds so my immune system stays strong.
Got an email back from Moffitt. Am trying to get an appt over there this week to have my records reviewed. Want to make sure I am getting the newest in care standards. My oncologist is onboard with me getting any up to the date information available.
Moffitt is aligned with Anderson in Texas. Both are known for their breast cancer centers. My brother in law has an in with someone at Moffitt.
I think Sloan Kettering in N.Y. is the top center. Anyone know anyone up there?